Friday, 24 December 2021
Grief & Consequences
Saturday, 4 September 2021
19 Weeks, 2 Days...
But we’re all grateful for that extra bit of time that treatment could buy her to slow things down, and for the medical team who made it happen. Things moved very quickly from the start. She fought hard through chemotherapy, radiotherapy, and immunotherapy - even knowing that it would at some point take her life.
Through everything, she was brave, strong, and never afraid. She didn't know what – if anything - awaited on the other side, but she found peace knowing that she'd be with my dad again after 25 years. She was selfless until the end, worried about her family and how we would cope, even in her final days in the hospital, when her lucid moments were few and far between.
In her last two weeks, she was supposed to just go in for a quick appointment for immunotherapy. Her oncologist said she couldn’t do it, that her blood results needed to be followed by an inpatient admission. Less than 48 hours later, we found out that she wouldn’t be going back home.
I stayed at her hospital bedside for her last ten days, holding her hand, as each day she slipped further away. It was the most precious time, and something I'll never forget. Visitors at the hospital were only allowed at this point for end of life. I’m eternally grateful that they were more than happy for me to stay there, and set up a folding bed for me so I didn’t have to leave.
As much as we knew it was coming, even her oncologist thought she’d have another week or two before things started to fail. Her oncologist left on the Friday, saying he’d see her on Monday. Sunday, at 1:50pm, she was gone.
She’d been mostly sedated for the last few days. But no one was expecting her to pass so suddenly. I’d been sitting by her bed, holding her hand, for days. One minute, she was there. The next, she wasn’t. I’ll never forget the way her face changed, as she stopped breathing and her eyes opened. I yelled for the nurses that something was wrong with mum. I held her hand, squeezing, shaking, telling her I loved her. The nurses came in and stood there. I wanted them to tell me that my worst fears weren’t coming true, not yet. Everyone thought she’d have more time.
It was nearly three hours before I let go of her hand, shaking, screaming, hysterically babbling to please wake up, please don’t leave me.
For the last few days, she was sedated to the point that the only way to describe it is living death. It was terrifying, but ultimately the best thing for her. As they adjusted the dosages, she would have lucid moments where she woke up, extremely confused. All I could do was tell her it was okay, that her doctor had given her some medication because they wanted her to get some rest, trying to comfort her until she went back to sleep.
The day before she passed, she woke up suddenly, looked at me, and asked
Since the start, knowing it’d most likely spread to her brain, mum always said that she wanted her body to go before her brain. She didn’t want to go through what she saw my dad go through.
They don’t know exactly why her mind started to slip in that last week. The tumor had shrunk. It’s possible that it was a side effect from radiation. Her memory, both long and short term, slipped so far in such a short time. Within minutes, she’d forget what we’d been talking about, and sometimes even that I was there. It was distressing for everyone, especially mum, which is when they decided on sedation.
Mum would express that she was worried about me putting so much time and energy into trying to support her, both in those few months after we found out she was sick, but especially as I spent her final ten days staying in hospital with her. It consumed everything. I would tell her “helping you is helping me”. I was either trying to think of ways to support her, or visiting her to cook and make sure she had easy meals to reheat, or even just spending time with her, with no words needed. Watching movies she wanted to see.
The only thing I could say to her towards the end, sarcastically, was “Yes, I’m sure I’m going to look back and think ‘damn, I wish I hadn’t spent so much time with mum’”. There was never going to be enough time. No matter how much time I spent with her over those 19 weeks, I knew it’d never be enough, whether she had two months or two years left.
I take solace in the fact that we didn't leave anything unsaid. We had a lot of difficult, but necessary, deep & meaningful conversations, even in her last week. She had things to say that lifted weight off her chest, and I had many too. It wasn't easy, and there were many tears, but it gave me a lot of peace and closure, and I hope it did the same for her too.
But I can't help but have regrets. She’d told me days before her admission that she had pain, very similar to when she was first diagnosed. Her liver. I couldn’t see the jaundice, even after her doctor said it. I can’t help but wonder - should I have pushed her to go to emergency, as I was worried about her liver? If they caught it those few days earlier, would it have changed anything? Would they have been able to catch it and reverse it?
In the end, she was never scared. I can only hope to one day be as brave as her. She didn’t know what, if anything, was on the other side. But she knew that she would be reunited with my dad, who passed 25 years before, and that gave her peace.
On June 27th, at 1:50pm, the world became a bit less brighter
None of it feels real. After this horrible disease taking over our lives since February 12th, tightening its grip with each week that passed, everything feels so empty. For those 19 weeks and 2 days, almost to the minute since we found out, nothing else mattered. Since mum passed, everything feels so crushingly empty. I rewatch the funeral stream over and over. I listen to the songs on repeat - the songs she'd told us at the start of all this that she wanted. “Imagine” by John Lennon at the start. Then “Love Me Tender” by Elvis as they lowered her casket to join my dad.
Rest In Peace, mum. I know you’re back with my dad, the one and only love of your life, after 25 years, and how much comfort it gave you to know that you’d be with him again.
Monday, 7 June 2021
I'm Not Ready For This
The past few months have been exhausting. Emotionally, mentally, physically.
On February 12th, we found out that my mum has cancer. Stage Four. Lungs, liver, brain... it's not looking good. Scratch that. We know it's not good.
I'll try to keep this short as to not bore you all, but it has quickly taken over so much of my life, it'd be impossible to not share here. I've never really had friends in real life, and I don't have many people to talk to.
In one week, everything can change. Within days, things changed from "my abdomen hurts a bit" to "you need to start treatment now, or you'll be dead in two weeks". There were no warning signs. It started in her lungs, but there's still no symptoms. It was only when her liver had swollen to over twice it's normal size, and was already completely overrun by the cancer, that anything appeared to be wrong. Even her GP of 30 years is quite shocked and distressed by it all.
She went through five rounds of chemo in 12 weeks, faster than her oncologist has ever seen. It's helped. But it's worn her down. She's not the same person she was just a few short months ago. Now, they're about to start radiation on her brain (we only found out that it'd spread to her brain two weeks ago).
It's scary. My dad passed from brain cancer, 25 years ago, and although I'm sure there's been great advances in medicine in that time, my mum watched him slip away and the awful side effects from his cancer and the radiation treatments. Three grandparents and both of my parents will have passed from cancer (assuming my mum doesn't get hit by a car any time soon).
From day one, mum has said that she didn't care where it goes, as long as it's not her brain. Unfortunately, Small Cell Lung Carcinoma tends to spread quickly to the liver and the brain. One month ago today, on her birthday, she cried with happiness when her scans showed it hadn't spread to the brain yet. Two weeks ago, it had.
No matter what treatment they do, the cancer isn't going to shrink much. And we knew from the start that it was never going to get better. All they can do is try to slow it down, and buy her some more time.
Cancer is a bitch.
There's been a lot of hard discussions. Talking about quality of life. What she wants on her headstone. The song at her funeral ('Imagine' by John Lennon). Things she wants when it comes to her final days.
I've been trying to keep it together, for mum's sake. My brother lives an hour away, so I've been trying to do what I can to help out. Whether it's looking in to things she wants to do, movies she wants to see, picking up groceries (read: my support worker picking up groceries while I sit in the car), prepping meals for her, doing a load of dishes or laundry, or just being there to talk, or not talk. Things like shaving her head when her hair started falling out. I go to appointments with her and take notes, because there's so much information coming, she can't remember all the details.
My focus is just on spending time with her, and helping where I can, but it's hard seeing her not being able to do things that were easy a few months ago.
There's just a lot to deal with, and I'm not prepared for this (as selfish as that sounds). It's hard putting on a strong face for mum, and then just falling apart when I get home. I'm filled with depression, fear, anxiety, sometimes even anger. I feel sick when I think about it. Taking care of myself is the next hurdle. Everything has been so intense, and it's moved so quickly. I know there's usually a point in life where the care-giving dynamic changes, and the children start caring for their parents, but it's too soon. I'm only 28. Mum just turned 64. I thought there'd be another twenty years. Nothing about this is fair.
I've spoken a lot to my support worker, even out of hours. She says I'm a friend first and a client second. If I message her at 10pm after a difficult day, she'll always call to check in. I've had many calls to Lifeline, one of which ended with them not believing I could keep myself safe, and sending 'someone' out to check on me. Little did I know, this ended up being the police, who agreed with their assessment, and then paramedics to transport me to hospital. I’ve stopped calling since then.
I'm trying to get my shit together. I'm trying to link in with a counselling service that specializes in terminal illness and grief ('pre-grief', as I've been calling it), but due to my complex mental health issues, they aren't keen on taking me on. My team are still pushing for it though. I'm also looking into finding an outpatient alcohol program, but resources seem scarce.
I know that my mum and I haven't had the greatest relationship at times, which I've talked about here before, but over the last two years, we've gotten a lot closer and mended the wounds. I talk to her every day, and visit her every Saturday (now twice a week). And I'm scared. The only other family I really have is my brother, and we haven't been particularly close. And I worry that, after my mum is gone, the only people in my day-to-day life are going to be those who are paid to be there (support worker ((I only have one these days, and she's become my best friend)), psychologist, doctor, dietitian, etc.). And as much as they mean a lot to me, that seems like a very empty existence.
I'll try not to let this topic overtake my posts, and as always, I want to get back to posting more. I was going to make this post after round two of chemo, round four, round five, hoping that things would quieten down. But with radiation set to start this week, I've realized it's not going to quieten down. It'll just move from one chapter to the next.
I know it's going to be a rough time ahead. While mum is still here, I have to keep going. What scares me if what will happen to me after she's gone.
Wagyu eye fillet. When it's potentially our last family dinner out, why cut corners?
(It was amazing, btw, and I had leftovers to bring home)
xxBella
Friday, 16 April 2021
Meanwhile...
I know this isn’t a proper post, but I just wanted you all to know that I’m still around. I’m okay. Things are hard right now, but I have to just keep on going, day by day.
Sorry for going 'ghost' again. I know I’ve said that I’d get back to posting at least monthly this year, but the last few months have changed so much in my life.
I don’t mean to vague-post, but there’s so many thoughts to compile before I can do a proper update, and I’m having trouble coming to terms with, and being able to articulate, everything that's going on. I am working on a proper post, I promise. But I’ve been stressing a lot that I haven’t been able to post an update, so I also wanted to post this in hopes of alleviating some of the (self-imposed) pressure and guilt.
If I haven’t posted in the next month, please definitely do send harassing emails until I get off my ass and actually do it (looking at you, Shelby!)
Again, I’m sorry for the vagueness. I just wanted to post something to let you all know that I’m working on it, and will hopefully resume our regular programming soon.
Love you guys. Thanks for putting up with me. I'd be so very lost without the community and friends I've found here over the past 9 years <3
Friday, 30 October 2020
" We are not lonely, because we chose to be alone"
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Saturday, 25 April 2020
Persephone
After tragically losing Billy 18 months ago, I still don't know if I'll ever get another dog. My heart just can't bear it.
But with Misty getting older, and being an only pet for the first time in her life, I decided some months ago that I wanted to look into getting her a little buddy. I didn't want to end up alone, and potentially risk the same situation that I'm in regarding dogs (not knowing if I could bear to get another cat, after I one day say goodbye to Misty).
So, last week, I had an appointment with my local rescue, and came home with a gorgeous little tortie.
Persephone (or 'Sephi' for short), is an absolute sweetheart. She has a squeaky little meow, and an endless desire for affection. At the rescue, they called her 'Cruella', but I can't possibly imagine why.
I was initially planning to rescue an adult cat, but after a lot of thinking about it, I decided that a kitten would be much less stressful for Misty. Her only experience of other cats is when the neighbourhood cats back home used to attack her, and I didn't want her feeling intimidated by introducing another adult cat.
Even going to the rescue was a big step. The last time I was there, Billy was at their attached vet clinic for his surgery. That was the last time I would ever see him alive. A lot of sadness and memories came up as I walked in to adopt Sephi, but this has helped add some more positive associations to the location.
Misty isn't 100% on board with her little friend yet. After slowly introducing them over the first week, there is still the occasional hiss or growl from Misty, especially when Sephi chases her around wanting to play. But a few days ago, Misty was curled up snoozing on my lap, and Sephi snuck up for a cuddle with her. They stayed there for well over an hour! They're getting along better every day, and that's the best I can ask for.
So far, I have felt better than I have for some months. Watching Sephi as she snoozes on my lap makes me feel like I'm floating. There has been so much stress going on lately - both in the world at large and my own life - it's made a welcome break to take some time and just enjoy the moment.
I'll update on everything else soon. My laptop has been in for repair for a few weeks (it's complicated, and potentially a lost cause), so I'm just writing this quick post while I visit mum.
I hope everyone out in the blogosphere is doing as best they can. Take care of yourselves <3
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Thursday, 27 February 2020
Make Them Never Want to Hurt You Ever Again
I'm making progress of making my unit a home, and trying to figure out how to feel safe and secure. It doesn't help that I made the mistake of letting someone in (a friend who was struggling with a depressive episode, and wanted someone to talk to) about 6 weeks ago, and they ended up hurting me. I haven't told my psychologist or GP about it, but my support workers know. Talking about it just seems pointless. Talking about it never helps. I spent the first couple of weeks afterwards staying at mum's every other night, just because I didn't want to be alone and stuck in my head. I barely ate unless I was at mum’s place for the first month or so, but now it’s starting to even back out into a more regular restriction.
There are also a lot of C-PTSD traumaversaries at this time of year, so it's all just piled on. I put a note on my fridge, for the first time ever, which reinforces why I need to get this weight off, that says;
NEVER WANT
TO HURT YOU
EVER AGAIN!!!"
It all seems futile though. The same force also drives me to drink more, which makes it all counterproductive. Although I managed to stop in the alcohol weight gain last year, it's taking forever to come off. At least two thirds of my calories come from booze, and basically any deficit comes from exercising, and since I've gotten back on track with my meds, some days I just don't have the energy to get on the bike. And I know that sounds like an excuse, but some days my medication makes me whole body tired. That said, a lot of the time, I will exercise while drinking, whether on the bike or the step. I’ve exercised while drinking for years, but now it feels like a necessity whenever I drink.
That said, I am doing really well with my medication. I haven't overdosed since I moved. Sometimes I'll take a few more PRNs in a day to zombify myself, but not taking weeks' worth of medication and passing out for days like I used to. My GP has finally agreed to take me off Webster packs (those blister packs where my morning, afternoon and night meds are all separated into individual doses for the week), and start transitioning to just picking up whole prescriptions like a normal person.
I'm not saying it'll never happen again. It's been one of my coping mechanisms for 15 years now, since I was 12, and it's not going to just disappear. But it's not happening multiple times a week like it was a year ago.
I'm having more days off drinking, but still short of my current goal of two dry days per week. Some weeks I get there, some I don't. I wish I could say I was motivated for health reasons, but really, it's mostly the calories. Even one day's worth of drinking calories could equal 0.2kg/0.5lb on the scales. I wish that were enough to go cold turkey, but the withdrawals just become too much, even with extra medication. And sometimes I just need the escape so badly. I've thought about going to treatment, but I can't leave Misty. After losing Billy two weeks after I initially became homeless and went into Supported Residential, I'm scared that if I go away, something bad is going to happen and I might never see her again.
Fun Fact: After totaling everything up from last year, I consumed a total of 305,645 calories in alcohol (99% of which are low calorie/sugar/fat, like vodka and dry wine, with the 1% being the occasional sugary cider). That's 39.7kg, or 87.3lbs, worth of calories.
I've started DBT with my psychologist. It's been on the to-do list for quite some time, but things have been so chaotic over the past couple of years, it just hasn't been a priority. Most of it just seems logical, but now that we're edging towards the whole 'changing behaviour' side of things, I'm panicking a little. I know what triggers my negative behaviours, and I know what happens because of it, but figuring out how to stop them makes my brain want to explode.
I was planning to just update on life in general, but it seems to be a mess of the links between trauma and weight and drinking, although that does pretty much describe my life at the moment. So, to lighten the mood - pictures!
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- 30g salsa (9 cal)
- 150g lettuce (21 cal)
From the same lovely neighbour who saved Halloween. I always thought that neighbours randomly bringing over cakes etc. was just something that happened in movies!




























